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There are very few books on anarchism or anarchist authors in Poland - and even fewer female authors.

Such names of female anarchists as Lucy Parsons, Voltairine de Cleyre, Maria Nikiforowna, Louise Michel, Maria Orsetti and others are completely unknown.

No wonder: no books are published either by them or about them.

The exception is Emma Goldman, although even so, most often people know only one quote from her (and that without knowing the context in which she famously said the words), although fortunately a book "Anarchism and Other Essays" was published many years ago.)

There is a chance to translate and publish another book by Emma Goldman entitled "Anarchism. "My Disillusionment with Russia." Like many others, the October Revolution (or, as some anarchists prefer: counter-revolution) disappointed Emma, who watched its course in detail.

The question is: does anyone have and can give or lend this book? If not, can anyone recommend where to buy it from? So far I've only been able to find it on Empik and Amazon, and surely there are better places to get this title.

*As far as I know, the publication of this book has encountered censorship problems. So please give me a hint which edition of this book is the best, probably even approved by the author.

Some students from #Lille (in #France), who are currently occupying the university campus of Lille 3 "Pont de Bois" to protest against the genocide happening in #Gaza, wanted to show their support to the Palestinian anarchist group, Fauda !

Free #Palestine ! Force à #FAUDA !

\#anarchism @anarchism @anarchismhub @AnarchistFederation

Does anyone can write something about this? What do you think?

! ! !

Emergency Social Security Campaigns Meeting Sunday 21 April 2024 3 – 4.30pm

Join Zoom Meeting https://us06web.zoom.us/j/88958156364?pwd=ah3dyMFY3y20G1HajLzZaLNVa3wKag.1

Meeting ID: 889 5815 6364 Passcode: 069808

We have called this meeting to bring together all those worried by and/or wanting to fight back against the Tories’ current all out assault on Disabled people, culminating in Rishi Sunak’s announcement today with plans to cut access to social security for millions of people.

For anyone who is worried, please remember that some of these changes may take time to roll out and others will only affect new claimants not existing ones.

For accurate information on what the key changes announced this week are see:

Tory plans: PIP no longer always cash, WCA harder to pass, UC migration sooner, no GP sick notes, DWP power to arrest and fine (benefitsandwork.co.uk)

Sick of the press and govt constantly talking crap about disabled people? So is journalist Rachel Charlton-Dailey...

[Click to listen to the article, and support the Canary]

I’m often asked what needs to change to make the world a better place for disabled people. It used to be a complex answer for me. It depended on the context I was being asked, who was asking, or what had been happening recently.

But now it’s simple: the world needs to stop hating disabled people and being so fucking ableist.

Ableism has always been rife in society, media, and politics. It feels like it’s been ramped up in recent years, but especially in the last few months. A big reason for this is that the government are intent on demonising us to cover for the fact they and their rich mates are stealing from taxpayers.

How the poison of ableism trickles down

This feeding of hate from the government and media to the common man is easily done when 75% of the British media is owned by the same two, rich, Tory-supporting men. The click-driven nature of news now means government ministers can call disabled people anything they want without the press challenging it.

After all, “languishing on benefits” is a much punchier vox pop than ‘minister claims people don’t want to work but they’re actually just trying to survive’.

These views are then repeated as fact by right-wing pundits on chat shows. Eventually, it becomes the public opinion that people on sickness and disability unemployment benefits are lazy and taking the taxpayer for a ride.

What the hatred manifests into

This awful rhetoric contributes to the centuries-old stereotype that disability is something to be ashamed of. Except now, they’ve made our lives so miserable that if you dare to attempt to live a happy disabled existence you MUST be faking it to rinse those hard-working taxpayers.

It means photography companies think it’s perfectly acceptable to leave disabled kids out of school photos. Young lads feel comfortable sitting on their shit podcasts and laughing about how they wouldn’t date a “mangled” woman in a wheelchair cos they’d be worried their equally shit mates would laugh at them. Heaven forbid they consider getting better friends.

It means cunts like Matthew Parris can week in and week out call disabled people lazy fakers who drain the taxpayer and when you, for example, co-ordinate 400 complaints against him the press regulator can come back with ‘Well that’s just his opinion as a journalist‘. Well isn’t it a good job that I get to have my opinion too?

And so The Week in Ableist Bullshit was born

If the last few weeks have proven anything, it’s that there’s simply too much ableism to keep track of and the media can’t be trusted to hold all of it to account – especially when they create a great chunk of it.

One thing I have always striven to do in my work is hold those making life harder for disabled people accountable. That’s why I’m delighted to be writing this new weekly column here at the Canary. In it I will collate and dissect the barrage of crap disabled people are facing from the government, media, social media, organisations, and society.

But I also want to celebrate the great things disabled people do too, so at the end of each column will be my disabled joy of the week. Come for the ableists bashing – but stay for the hidden pockets of joy.

This week’s is a much more condensed version but from next week expect no stone to go unturned. So, shall we?

Shakespeare’s Globe doesn’t give a fuck if disabled people hate them

A few months ago it was announced that in the Globe’s latest incarnation of the ableist classic, Richard III will be played by a non-disabled performer. In my opinion, the play and role have always been an awfully over-exaggerated portrayal of the disabled villain trope.

However, the Globe lost me when it released a statement following pushback from disabled people in which they almost claimed that there was an abundance of roles for disabled people to play. The artistic director Michelle Terry, who is taking up the role, stated “it will come around again”.

Many hoped that our voices would be heard and the Globe would change its mind, but today the full cast was announced and Terry remains in the role. When I visited a couple of years ago I found their access to be exceptional.

But access doesn’t matter when the historic theatre refuse to cast us in stories about us.

The government is trying to fuck over disabled students even more

Being a disabled student is already hard, but now the Department for Education (DfE) is proposing to abolish a huge chunk of disabled students’ allowance funding.

The cuts would apply to “specialist non-medical help” which could mean students lose funding for interpreters, note-takers, and more. It will mean disabled students will be put at an even bigger disadvantage.

The consultation closes on 3 July and is open to disabled students, providers, and higher education staff. You can have your say here.

Daily Mail is back on its ‘ADHD is fake’ bullshit

There are so many stories about different ways in which ADHD doesn’t exist that I fear ‘ADHD lies of the week’ may become a permanent feature here. I swear at times it feels like the Daily Mail and the Times are having a competition to see who can whip up the most hate about people with ADHD.

This time they’re aided by exercise bore Joe Wicks who is blaming processed food for the increase in ADHD diagnosis. The fact this has been disproven many times didn’t bother the rag though.

I know the realities of being neurodivergent all too well. Swapping my safe food – chicken nuggets – for some veggies won’t make my life any easier. But these ignorant fools not speaking on issues they have no idea about will.

Disabled Joy of the Week – Keedie

In amongst all the hatred towards neurodivergent women and girls, Elle McNicoll is a constant force for good. The author’s latest offering Keedie is a prequel to her behemoth A Kind of Spark.

The book is about standing up to those who try to make you feel small and celebrating the brilliance of autistic and neurodivergent people. Attending the Autistic Girls Network online event celebrating Elle felt like a balm for my soul that had been destroyed by all the abuse we’ve endured these last few weeks.

Neurodivergent women and girls loudly being ourselves and refusing to be made small in a world that wants to make us ashamed of who we are. You can buy Keedie here.

And finally…

I wanted to leave you with something my pal told me when I was feeling guilty about treating myself. As someone who comes from poverty, the idea of frivolously spending money on myself feels wrong.

Enter T with some excellent wisdom:

> > > When you don’t treat yourself the Tories win a little bit. > >

In this terrible world it’s important that, when we can, we celebrate who we are – even if that’s by buying the cute boiler suit.

Until next week, fuck the Tories and don’t believe all you read.

At least six people lock themselves in Grade II-listed York and Albany next to Regent’s Park and post notice

Squatters have taken over a pub in London leased by Gordon Ramsay that is up for sale with a guide price of £13m.

A group of at least six people locked themselves inside the Grade II-listed York and Albany hotel and gastropub, next to Regent’s Park, boarding up the windows and putting up a “legal warning” defending their takeover, the Sun reported.

In photographs taken before the windows were further boarded up, a person could be seen sleeping on a sofa in the bar, surrounded by litter.

On Saturday morning, two masked people wearing black tracksuits and carrying backpacks and carrier bags exited the property, running away from reporters before they could be approached for comment.

A notice taped to a door said the group had a right to occupy the venue, which they said was not a “residential building” and was therefore not subject to 2012 legislation in England and Wales that made squatting in a residential building a criminal offence.

The piece of paper, signed by “the occupiers”, also said: “Take notice that we occupy this property and at all times there is at least one person in occupation.

“That any entry or attempt to enter into these premises without our permission is therefore a criminal offence as any one of us who is in physical possession is opposed to such entry without our permission.

“That if you attempt to enter by violence or by threatening violence we will prosecute you. You may receive a sentence of up to six months’ imprisonment and/or a fine of up to £5,000.

“That if you want to get us out you will have to issue a claim for possession in the county court or in the high court.”

Ramsay called the police on Wednesday but was unable to have the people removed, it is understood.

Another notice asked passersby for “food and clothes donations or anything else you no longer want or need”.

The occupation of a person’s non-residential property without their permission is not a crime in England, though police can take action if crimes are subsequently committed, including damaging the property or stealing from it.

The Metropolitan police said in a statement: “Police were made aware of squatters at a disused property in Parkway, Regent’s Park, NW1 on Wednesday 10 April. This is a civil matter and so police did not attend the property.”

In 2007, the film director Gary Love bought the freehold of the former 19th-century coaching inn.

He subsequently leased the property to Ramsay on a 25-year term with an annual rent of £640,000.

The Kitchen Nightmares host unsuccessfully attempted to free himself from the lease in a legal battle at the high court in 2015.

The venue went on sale at the end of last year with a guide price of £13m.

According to government guidance, squatters can apply to become the registered owners of a property if they have occupied it continuously for 10 years, acted as owners for the whole of that time and had not previously been given permission to live there by the owner.

Neil Goodwin was charged over his protest outside parliament in 2023. However, a judge saw it for nonsense - and here, Neil tells all.

[Click to listen to the article, and support the Canary]

Last week the Canary ran my story A disabled man is being PROSECUTED for blocking parliament with his MOBILITY SCOOTER just before my trial at Westminster Magistrate’s Court. Here’s the full story.

The climate crisis: very real, and very now

On July 19 2023, exactly a year on from the hottest day on record, and the devastating Wennington wild fire in East London which completely destroyed four houses, I had travelled up to parliament to raise the alarm about the effects a climate catastrophe will have on the disabled community and vulnerable groups, the old, and the frail.

I have multiple sclerosis (MS) and the hottest day in 2022 really drained what little energy I usually have. I felt like the plants in my garden, completely wilted, my leaves turning brown. It was the first time that I’d had to be pushed into my garden in a wheelchair. We rescued an exhausted robin, unable to even fly up to the bird bath, cooling off in a tub of rancid water. It was truly horrifying.

In early July 2023, I attended a talk at the Southbank Centre with Greta Thunberg and was shocked to learn that the government was preparing to sign new, and very significant, oil and gas licenses.

I learnt that the Rosebank project, the UK’s biggest untapped oilfield 80 miles off the Shetland coast in the North Atlantic, would have the potential if it were burned to produce as much carbon dioxide as running 56 coal-fired power stations for a year.

So, at a time when the UN Chief António Guterres started using the term ‘Global Boiling’, to describe the acceleration of terrifying climate impacts, Rishi Sunak was preparing to effectively tear up our commitment to Net Zero and the Paris Agreement and block our only escape route from global catastrophe.

Warnings from the 1990s

I am a documentary film maker.

In the late 90’s, when ‘Global Warming’ was very much considered to be junk science, I made a film called ‘Turned out Nice Again – Britain under climate change’, which set out to show what life would be like in the-near-future, about 2060, if we failed to curb our use of fossil fuels. Stuff I thought I’d never have a front row seat to witness:

Turned Out Nice Again - Britain under Climate Change

It was during that time that I learnt that CO2 emissions take a while to affect the climate. Estimates range from between 10 to 30 years. So, the impacts we are experiencing today relate to past emissions, say the invasion of Iraq, and present emissions will affect the atmosphere roughly 10 to 30 years from now.

So, I knew that with CO2 it wasn’t simply a case of just turning off the tap. Phasing out needed to happen gradually and consistently, allowing the economy and society the time to adjust. It couldn’t be business as usual right up to the 2050 deadline, the deadline stipulated in the Paris Agreement, and then bother. It most certainly couldn’t involve utilising new oil and gas fields.

Disabled people taking a stand

So, extremely angry, I had travelled up to Westminster on a Wednesday, as I say, exactly one year on from the hottest day and the Wennington wild-fire, and at around the time PMQ’s would have been winding up and parked my mobility scooter right outside the Carriage Entrance to parliament.

I had dressed up the basket on the front to look like it was on fire, with a warning sign showing a wheelchair bound person caught between a fire and a flood; referencing the Wennington wildfire:

Image

Also, the danger from flash flooding, which was tragically emphasised in the run up to my plea hearing by the death of an 83-year-old Chesterfield woman called Maureen Gilbert, who drowned in her home during Storm Babet, as she was unable to escape the rapidly rising water inside her terrace home owing to mobility problems.

‘I cannot run from a climate emergency’

I had carried a placard with fake flames coming out of the top that said, ‘I cannot run from a Climate Emergency’. Neither run literally, because of my disability, nor run from what I felt was my social responsibility to try and spotlight the implications of a climate emergency, not just for the disabled community, but for all vulnerable people – the old and the frail.

I had asked the first police officer who approached me, I believe my arresting officer, to turn on his body cam and record a safety announcement. Me detailing my various disabilities. I also have ankylosing spondylitis (AS), an arthritic like condition that fuses your joints, that has left me with a completely fused neck, and completely fused lower spine, called a bamboo spine.

I explained exactly why I was there, and I was told that I was liable to be arrested:

Image

I remember asking him to see it not as an arrest, but a demonstration in how difficult it would be to save someone like me from a fire at a moment’s notice and to carry me to the safety of a police cell. To see it as an exercise in preparedness. To which, I remember him saying, ‘If you were in a burning building, I’d throw you over my shoulder and carry you out.’

And I remember thinking, if you threw me over your shoulder, it would be like throwing a 13 stone ironing board over your shoulder, as my back and neck are almost entirely fused, and you’d probably drop me and/or break my neck in the process. It certainly wouldn’t be that quick and easy.

Surrounded by cops

My plan was to attract a swarm of cops around me, then use them as bait to attract the press, thereby elevating my protest into newsworthiness, then get nicked.

No D locks, no superglue, no seriously pissed off commuters, just a very uncooperative seriously disabled man on a ‘burning’ mobility scooter, a potential public relations nightmare, saying, ‘come and have a go if you think you’re strong enough’. Or indeed, only if you’ve got suitably accessible police infrastructure. Which I had hoped to find out.

I was given every opportunity to leave, invited on numerous occasions to carry out my protest along the pavement, away from the entrance. But it felt right to remain just where I was. Right in the middle of what they like to call, ominously, The Sterile Zone:

Image

It’s strange, but I felt both my strongest and weakest at the same time. Surrounded by cops, one of whom apparently had a best friend with MS. None of whom could lay a finger on me, through fear of breaking something.

Who knew that fragility could become a super-power? Through-out, the burning issue of climate change held aloft, perhaps barring the way of the Prime Minister, Rishi Sunak, who’s motorcade would have usually swept past right about then.

One of the police mentioned a secret tunnel right through to Downing Street and a short journey by golf cart.

Finally nicked

I was arrested under the 143 Police Reform and Social Responsibility Act 2011, which I thought was quite apt, as I sincerely believed that I was acting socially responsibly raising these urgent issues, especially for the disabled, the vulnerable and the frail. Those who would be shoved onto the front line of the government’s war against the weather.

I later found out that that particular law had made it illegal to carry a sleeping bag in Parliament Square, in answer to Brian Haw’s more than a decade of dissent and Occupy.

Unfortunately, I wasn’t plucked to safety from my flaming mobility scooter. So, no dodgy optic of me being carried away.

I waited eight months for my day in court. With countless sleepless nights, abject terror and righteousness slugging it out all through the winter, fretting over fines, and legal costs, and the bailiffs seizing my stuff. You can take the tele, but don’t take my Penny Black!

Preparing for court

So, I had done myself a favour and talked to Andy at Green & Black Cross, who straightened me out on quite a few things.

Stuff like, the district judge that I would be getting at my trial last week, having a better understanding of the law than your ordinary magistrate, preferring to be addressed as ‘sir’ or just plain ‘Judge’ to ‘Your Honour’, and that he doesn’t wear the silly Les Misérables head gear. Unlike my nightmares, where he’s also wearing a black hankie.

The good news was that I wouldn’t be getting the dodgy hanging judge Silas Reid, the one who is trying to take away jury trials, basically redact that last little bit of the Magna Carta, and does you for contempt for even mentioning the word ‘climate’. He’s terrorising Just Stop Oil in the Crown Court.

I’d decided to represent myself, as, even though legal stuff just goes right over the top of my head, I’d learn on my feet and try and blag my way through the proceedings. Apparently, you get more leeway. Plus, I’d have a great McKenzie friend, called Josh, courtesy Green & Black, to whisper advice.

Climate change and the impact on disabled people

On the day, the Crown Prosecution Service (CPS) got off to a very bad start by disclosing crucial documents a quarter of an hour before the hearing. Very shoddy, I must say. But understandable, considering the mountain of paperwork Just Stop Oil is generating. No wonder the guy looked depressed. This apparently pissed-off the judge big time.

Before we got underway, there was just time to take the plea of a Met police officer accused of groping a colleague.

Right from the off, the judge began by making it clear that the existence of a climate emergency was not in question. So, all that evidence I’d gathered, and helpfully stuffed into a ‘bundle’ for the judge and CPS, couldn’t be heard.

I’d spent a lot of time looking at the government’s National Adaptation Programme (NAP,) particularly an outlook from Stephen Belcher, the Chief Scientist at the Met Office:

> > > Climate change is happening now… Heavy rainfall events that can lead to flash flooding are expected to become more frequent and intense across the country. Summer temperatures above 40oC, seen for the first time in July 2022, will become more commonplace by the end of the 21st century. > >

Also the ‘UK Climate Change Risk Assessment’ (CCRA), the latest one published in January 2022, six months before the Wennington wild fire. Its Executive Summary sounding like an Extinction Rebellion leaflet:

> > > Climate change is happening now. It is one of the biggest challenges of our generation and has already begun to cause irreversible damage to our planet and way of life. We have clear evidence demonstrating the pace of warming in recent decades and the impacts we will face should this continue. As we redouble our efforts to achieve net zero, we must also continue to raise ambitions on adaptation to ensure the UK is resilient to the challenges of a warming world. > >

CCRA3 landed on cabinet desks in January 2022, six months before the Wennington wild fire, giving us a snapshot of what the government knew about the seriousness and challenges of climate change at that point in time.

So the case would almost entirely revolve around Article Ten of the Human Rights Act 1998, and The Freedom of Expression, and how reasonable I was acting in pursuing this right.

Eight hours of cops bleeding their hearts

The prosecution set out the issues. I was arrested blah blah blah… and showed the body cam footage of my arrest. Me looking almost sullen. Even rude. Not saying a word, as my arresting officer cautioned me.

By that time, I had had two hours of eight cops worth of near constant questions and pleading and befriending and guilt trips. ‘My best friend has got MS.’ ‘I’m a lesbian.’ ‘My dad is dying of cancer and I was planning on visiting him.’ That kind of thing. So, I looked exhausted:

Image

My arresting officer took the stand. I counted five mentions of Just Stop Oil, who were being mass arrested on Parliament Square at the time of my action. Sorry JSO, but I was keen to distance myself from you.

The judge asked me what if there was any campaign group that I was connected to. I told him I was loosely affiliated with DPAC, Disabled People Against the Cuts, although my placard had said DPACC, Disabled People Against Climate Change.

It turned out that the Met had just the one suitably modified van to transport disabled people to the nick, codenamed Pixie1 (my old road protestor mates will appreciate the name). And that had been on its way to Croydon that day with part of the latest Just Stop Oil mass arrest. JSO had been having their last big bash before the summer recess and had pretty much used up every available van and cell inside the M25, including Pixie1.

I’d heard of the arrest of a disabled JSO protestor called Ari, who had been arrested, and witnessed the police practically begging a black cab to take her to the station, and had often wondered whether the cops could possibly handle a group action.

CPS trying their best to smear a disabled man

The CPS and the judge went to great lengths to try and ascertain the size of the gap I had left at the entrance, which they agreed was a double gate.

Did I block anyone? No.

Would I block anyone? Perhaps.

Slowly they scrolled through the grainy, partly obscured Body Cam footage looking for the right angle. Looking to see if I had completely blocked the highway, or whether a vehicle could still get by. Once I realised what they were doing I couldn’t help but give a little chuckle. I had the perfect photo taken by my mate Gareth Morris, where you could clearly see the gap.

When I showed them Gareth’s pic, and that there was plenty of space, the prosecution argued that a vehicle still wouldn’t be able to pass by safely. Whereupon the judge gave me my second spontaneous chuckle of the day, pointing out there were plenty of policeman there to stand between me and a vehicle, to make sure it was safe. He really had it in for the CPS that day.

‘Doing my bit’

I trundled my wheelchair up to the stand, where I dropped my notes, and made a futile attempt to pick them up. I told the court that according to the MS society’s website:

> > > excessive heat can often make MS worse. Which when you consider that we already suffer greatly from fatigue, often mentioned as one of the worst symptoms of MS, the promise of more days, perhaps entire weeks, of 40-degree heat, would make life impossible and intolerable. > >

I broke down twice on the stand. Once when I spoke of my devastated garden on 19 July 2022, and once when I spoke of the tragic and terrifying drowning of Maureen Gilbert, during Storm Babet, one of the people I said the government had thrown onto the front line of their war against the weather.

I told the judge that I saw this as doing my bit as a 58-year-old man and decried the 20 somethings who were being imprisoned for demanding a future. A future that I felt that I could at least now look in the eye.

A judge sees sense

We waited for the verdict for about half an hour. Me convinced that, whilst the judge might say nice things about my convictions, his hands would be tied legally.

When he came back, after the usher had demanded ‘All Stand’, and according to my friend Saskia’s excellent notes, he mentioned ‘reasonable excuse.’ That ‘The defendant was there to protest under Article 10’. That it had been about ‘Government failure and the granting of new fossil fuel leases.’ About ‘How this would affect people with disabilities. How high temperatures directly affect people with MS.’ The risk of fires, and ‘on the anniversary of the Wennington fire.’

I was so made up that I’d been successful in linking all these elements together on my day in court.

I was, ‘peaceful and dignified.’ And, crucially, there were doubts that it I ‘can be properly said to have been blocking the gates.’ That, ‘Not one vehicle entered or left’ whilst I was demonstrating, so there was ‘no evidence of obstruction.’ I was ‘fully cooperative’ and moved once I had secured my day in court. I was “passionate, articulate and honest in everything that [I] said’. I was proper blushing by this stage, but still expecting the words, ‘but’ or ‘unfortunately’.

He went on. Exploring ‘the balance of rights under Article 10’, and ‘reasonable excuse’, about ‘Zeigler’, which gets mentioned a lot. To be honest, there were loads of legals that just went over the top of my head, including the classic what the hell does that mean? line ‘The occupation was more than minor but less than major.’

I fought the law…

Whereupon, he suddenly blurted out ‘Not guilty. You are free to go.’ Leaving me to just stare into space, until the usher finally chucked me out.

So yes, I can now say that I fought the law, and the law… lost. No guesses as to what tune I first played when I finally got home.

Featured images and additional images via Gareth Morris

We're in the middle of a plague

[Click to listen to the article, and support the Canary]

The NHS killed Sophia Mirza on 15 November 2005. Sophia lived with myalgic encephalomyelitis (ME/CFS). In July 2003, psychiatrists got cops to smash the door into Sophia’s home down and forcibly take her to a secure psychiatric unit, where she was imprisoned against her wishes for two weeks before a tribunal ordered her release. This ultimately led to her death.

In January 2024, Olivia Jane Mott travelled from the UK to Dignitas in Switzerland to end her own life. She lived with ME. On 27 March 2024, Lucy Mayhew died. She lived with ME.

Right now, Millie McAinsh is dying in an NHS hospital because doctors don’t believe her illness is real. They previously sectioned her under the Mental Health Act, enforced Deprivation of Liberty Safeguarding (DoLS) measures on her, and are forcing her to have treatment she doesn’t want. Millie lives with ME. So does Karen Gordon – in an almost identical situation to Millie.

So, nearly 20 years after the NHS killed Sophia, people living with ME are still dying while the state either lets them or actively brings it about. The obvious question is why? Well, the Canary has extensively documented the answer to that.

However, the less obvious but perhaps more necessary question is why are we allowing this to happen?

ME/CFS: inaction, inaction, inaction

The answer to that is a complex melting pot of issues, including (but not limited to):

• ME/CFS is still poorly misunderstood – or rather, made out by the medical profession, the state, and media to be.

• The ME community exists in the most part of people online who are a) clued-up on the issues, and b) have a diagnosis in the first place. Read this about fibromyalgia and ME diagnoses.

• People have their own political views which play into how they respond to situations of injustice, abuse, and discrimination. We’re a mixed bag of left, right, and no wing.

• The full force of the media and state has been consistently putting its boot on the neck of the ME community.

• Charities and Disabled People’s Organisations (DPOs) within the community tend to work to their own agendas – not collectively. But one of the most pressing one is the community’s inability, and in some cases unwillingness, to protest.

Where are the protests? Where are the occupations?

Campaigning, protesting, and taking direct action have throughout history been the way ordinary people have brought about change. Be under no illusions: it is NOT politicians, charities, or the state who do – and even when they have, it’s because people like you and me have forced them to.

However, this has always been the circle that (until this point) cannot be squared: severely chronically ill and disabled people cannot easily protest. They’re bodies often won’t let them. So, they need allies and advocates to do it for them.

Yet where are the protests from non-chronically ill allies?

I seem to recall some shoes being placed outside the Department of Health and the BBC a few years ago (I’m being wry – I was there). Otherwise, the ME community doesn’t protest – unlike nearly every other marginalised group in the UK.

For example, me and my partner Nicola were literally blocking one of the main arterial roads into Westminster with other disabled people a few weeks ago. It was over benefit-related deaths. Cops kettled disabled wheelchair users and threatened people with arrest.

Yet that pales in comparison to the tens of thousands of people who have died under the Department for Work and Pensions (DWP) regime; one the UN said caused “grave” and “systematic” violations of chronically ill and disabled people’s human rights.

ME/CFS: we literally have nothing to lose

So, why has the ME community not embraced direct action and protest as part of its strategy?

I can’t safely answer that. That’s for all of us to reflect on. I think there’s elements of class within this. Many marginalised communities are also socioeconomically marginalised by the state. That is, they’re poor in every sense. Specifically, not only does the state marginalise you for, say, your ethnicity or disability, it also marginalises you economically.

As American writer and civil rights activist James Baldwin summed up:

> > > The most dangerous creation of any society is the man who has nothing to lose. > >

Black people, disabled people, refugees, non-working people all have the least to lose – therefore, civil disobedience isn’t as daunting.

The ME community needs to fully recognise its own marginalisation and take that to its very core. Millie is a case in point for us all: she has little to lose, now – and things can’t get much worse.

Shut up and sit down

There’s another element to this lack of protest and direct action.

Regarding Millie, I keep seeing comments, and am also being told privately by quite well-known figures in the ME community, that:

> > > Things are going on behind the scenes. > >

But:

> > > You shouldn’t really do ‘x, y, z’ as it will make the situation worse for Millie. > >

And:

> > > The ME/CFS charities are working with Millie’s family. > >

If I hear another comment along these lines I’ll scream.

Whatever the ME charities and those in the self-appointed (which they are, unless people with ME took a vote on it that I missed) upper echelons of the community have been doing since the NHS killed Sophia on 15 November 2005 HAS NOT WORKED. If it had, Millie and Karen would not be in the situation they’re in.

Olivia would still be alive.

Lucy would still be alive.

And Merryn, Maeve, and Kara Jane would still be alive.

Nothing has worked in 20 years.

Labour MP Debbie Abrahams once said in parliament regarding the tens of thousands of disabled people that have died on the DWP’s watch:

> > > Does the minister think that it is unacceptable that any government policy should cause their citizens to take their own life or to die? If he does, should there not be a moratorium on this policy until it is got right? Surely one death is one too many. > >

Why has the ME community for decades accepted so many deaths of its own?

It is past time that the ME community realised that we are perpetually going round in circles, doing the same things over and over again – and that they are not working.

It is also past time that the ME community stopped allowing certain gatekeepers to govern how it conducts itself and how it responds to the abuse medical professionals and the state inflicts on its members; abuse that is not inflicted on those same gatekeepers.

And it is past time that the ME community stopped putting its faith in charities who take hundreds of thousands – sometimes millions – of pounds every year in donations and yet demonstrably achieve absolutely nothing with it.

That is, the ME community and its allies in other chronic illness communities like long Covid need to take matters into their own hands. Enough really is enough this time.

Get our acts together, or we are as good as dead

Larry Kramer was the founder of direct action group AIDS Coalition to Unleash Power (ACT UP). Him and his supporters advocated for disruptive civil disobedience in the face of the HIV/AIDS crisis that was sweeping the US in the 1980s.

ACT UP members repeatedly got arrested for actions like blocking roads. However, Kramer and his group changed the course of HIV/AIDS: how it was viewed by the public, how it was represented by the media, and ultimately how it was treated by medical professionals.

He once said:

> > > I was trying to make people united and angry. I was known as the angriest man in the world, mainly because I discovered that anger got you further than being nice. And when we started to break through in the media, I was better TV than someone who was nice. > >

The ME community has been “nice” for far too long. It’s not like we’re complaining about potholes, tree-felling, or London’s ULEZ scheme. We’re fighting against the state-run health service literally killing members of our community. Yet, all those three other examples I gave have seen bigger – and often more civilly-disobedient – protests than the ME community has ever engaged in.

Crucially, though, Kramer famously screamed in the middle of a meeting of AIDS activists who were arguing among themselves and utterly disorganised:

> > > Plague! We are in the middle of a plague! And you behave like this! Plague! 40 million infected people is a plague! Until we get our acts together, all of us, we are as good as dead. > >

So, get their act together they did.

The ME/CFS community needs it’s own ‘plague’ moment

The ME community’s “plague” moment should have been Sophia’s killing in 2005.

But it wasn’t.

It should have happened at the start of the coronavirus (Covid-19) pandemic.

But it didn’t.

It should have been Merryn’s, Maeve’s, Kara Jane’s, and every other person with ME’s deaths because of how the system has treated them.

But it wasn’t.

So, I ask you this: is it going to take the NHS killing Millie for the ME community to have its “plague” moment and finally ‘get its act together’? Because that cannot happen.

Millie’s story – ending with her returning home to safety – must be a watershed moment for all our sakes. It must be a moment where we as a community stare at ourselves in a mirror until our eyes collectively bleed and ask ourselves whether what we are, and have been, doing is right – and if we should continue with it.

And I can tell you now: the answer to those questions is ‘no’.

Religious leaders reject division and celebrate diversity at city’s first interfaith ifta

As politicians continue to argue and the war in Gaza rages on, leaders from the Muslim and Jewish communities in Bradford held an interfaith iftar on Wednesday evening, to celebrate the diversity of this part of West Yorkshire.

Laurence Saffer, the president of the Leeds Jewish representative council, described the similarities between practising Islam and Judaism and said it was important to attend the iftar – the evening meal held by Muslims observing Ramadan – because “it’s what we do”.

Addressing the 80-strong audience at the community centre by the historic Lister Mills – the world’s largest silk factory at the height of the city’s industrial past – he said: “I talk about the elephant in the room, which is Israel and the Palestinians. We have to talk about what we believe. Because when the Jewish community talks and somebody asks me, ‘does the Jewish community believe that the Palestinians have the right to self determination?’, the answer is a resounding yes. We do. We fully support that.

“When members continue to ask, ‘do you believe that the Jewish people are entitled to self determination?’, the answer invariably is yes, we do. We respect your rights.

“Then we say: actually, what do we disagree about as people living here in the United Kingdom? It’s often things like borders or the status of Jerusalem – which, in reality, I don’t have any influence over and neither do our Muslim friends. So when we break it down and say the things that we don’t agree on, surely there’s very little.”

Bradford has one of the largest Muslim populations and one of the oldest Jewish communities in the UK. Rabbi Dr Joseph Strauss founded the Bradford synagogue in 1873; his great-grandson Richard Stroud, a trustee at the synagogue, was at the iftar. Leaders from the Sikh, Buddhist and Hindu communities joined as well as important community figures.

This year’s Ramadan began on 10 March and is due to end on 9 April, when Eid al-Fitr celebrations marking the end of the holy month will be held. During the month, Muslims fast – which involves abstaining from eating and drinking during daylight hours – as well as focus on self-improvement, self-reflection and giving to the less fortunate.

Safina Aziz, chair of the Professional Muslims Institute, urged people of all backgrounds to call out every form of hate, emphasising the long history of partnership between the Muslim and Jewish community.

“There are many personal ties between us, we have celebrated happy times together and stood together during challenging times,” she said. “We’re all very saddened by what’s happening in both Palestine and Israel. We stand together to express our shared commitment to protecting the relationship between our communities.”

Rabbi Natan Levy, head of operations at Strengthening Faith Institutions, hailed the success of the city’s first interfaith iftar and said he hoped renewed dialogue could allow people to realise that “we have forgotten to listen to stories, we have forgotten to understand that to love another person we must know what hurts them and know how they suffer”.

skip past newsletter promotionafter newsletter promotion Ismail Patel, a Muslim from Bradford, said he liked to recognise people from different backgrounds, from the Jewish community to the Hindu community, and found it fascinating to go to their different places of worship.

He pointed to Bradford cathedral’s faith trail, in which visits to local temples, churches and mosques take place on a Saturday before a meal is shared as a sign of enduring community.

A resident in the city for 18 years, Patel said events in Gaza had affected Bradford politically. “Many people here are upset with Labour’s position over Gaza – I can see a lot of votes going to the independents during the election.”

Last October, the Labour councillors Sarfraz Nazir and Taj Salam resigned from the party over Keir Starmer’s comments on the Israel-Hamas war and joined the Bradford Independent group. They will stand in local elections on 2 May.

cross-posted from: https://slrpnk.net/post/8263274

> YT Link

Alternative link

cross-posted from: https://discuss.online/post/6031144

> While it would be easy to dismiss this as CrimethInc [hereforth the Outlet] cautiously mitigating any potential liability if self-immolation generalizes, the rejection of the framework of martyrdom demands attention. The question is not whether Aaron qualifies as a shahid within the Palestinian context, although demonstrators in Yemen have proclaimed Aaron a “martyr of humanity” and an argument can be made for him having become an anarchist martyr in the lineage of Louis Lingg, Avalon, and Mikhail Vasilievich Zhlobitsky. The bigger issue: the Outlet’s assertion that an individual’s death, particularly in the context of the US, is the “worst of all possible certainties” reveals a deep disconnect with the context of this entire decolonial struggle. In the days following October 7th, anti-colonial anarchist thinkers such as Zoé Samudzi argued that the figure of the martyr marked a fundamental contradiction for the secular left’s ability to fully comprehend and act in solidarity with the Palestinian resistance. The martyrs constitute a force in the present for all who live and continue to struggle. Aaron framed his self-immolation as “not that extreme” compared to the ascension to martyrdom of tens of thousands in Gaza. By implying that Aaron’s choice was too extreme, the Outlet dishonors the reality of the struggle within Palestine and undercuts the potential of Aaron’s sacrifice.

Collective Action Problems are Not a Capitalist Plot: On the Non-Triviality of Going from Individual to Collective Rationality

https://wedontagree.net/collective-action-problems-are-not-a-capitalist-plot

@anarchism

By John Pring on 22nd February 2024

Listen

Disabled activists have announced a fightback against a series of “horrific” government social security reforms and have called for “active resistance” to the plans, starting with a national day of action and a protest in London early next month.

A meeting in parliament this week heard that disabled people could not wait for the general election, because there was no guarantee that a Labour government would reverse the government’s proposals.

Instead, they called for a return to street protest, led by Disabled People Against Cuts (DPAC), to resist Conservative plans to cut out-of-work disability benefits and introduce other harmful social security reforms.

That resistance will begin with a day of action on 4 March, which will include a protest in central London two days before the spring budget.

Monday’s meeting was attended by leading disabled people’s organisations from across the UK, and senior figures from two major unions: PCS, which represents many frontline DWP workers, and Unite, which has close links with disabled activists.

Among DPAC’s concerns are government plans to intensify the conditions and sanctions imposed on benefit claimants, and to tighten the work capability assessment (WCA).

They also point to proposals that will eventually scrap the WCA, and rely instead on the personal independence payment (PIP) assessment.

This could see benefit cuts for hundreds of thousands of disabled people and new powers for unqualified work coaches to decide what work-related activity a disabled person should carry out.

DPAC also says that hundreds of thousands of disabled people could be at risk of having their benefits sanctioned by the government’s roll-out of so-called “in-work conditionality”\*.

Ellen Clifford, of DPAC and the UK coalition of Deaf and disabled people’s organisations that monitors the implementation of the UN disability convention, said disabled people were now faced with “another set of horrific proposals in the pipeline” after 14 years of their lives becoming “harder and harder” under Conservative-led governments.

She said Labour had promised to work in co-production with disabled people on social security policy if it won power, but disabled people remembered that it was Labour that introduced the WCA “and find it difficult to trust where that co-production will go”.

She said: “The line seems to be that Labour needs to present itself as being tough on welfare reform in order to get elected.”

She added: “We simply can’t afford to wait until after an election and definitely not for a lengthy process of co-production to start fighting back against these horrific proposals.

“We can’t wait for anyone else to stop them.”

Paula Peters, a member of DPAC’s national steering group, told the meeting that “strong and principled leadership” was needed to oppose the “completely unacceptable” government reforms and to raise awareness among the public about why they were wrong, but “Labour clearly isn’t going to do that”.

She said: “We need to build a united campaign that speaks loudly to say that these changes are completely unacceptable, and we need to demand instead a social security system that is fair for all, one that provides a social safety net that affords a decent living, one that we can access without having our mental health destroyed, and one that doesn’t kill us.”

She said that was why DPAC has called the national day of action for 4 March, two days before the spring budget, which will include a protest in London, and – it is hoped – other protests organised by local groups around the country, while DPAC will also suggest ways that disabled activists can take part from home.

Andy Greene, a member of DPAC’s national steering group, who has played a crucial role in past DPAC direct action, told the meeting: “I think there is a real need just to get back on the streets… and make sure we’re a street presence again, because I think that is where our strength came from previously.

“I think that re-establishing that commitment to street politics is important for any campaign.”

John McDonnell, the Labour MP, DPAC member and former shadow chancellor, who hosted the meeting, said he believed the event was about the “relaunch of a resistance movement on disability” after years of “cuts, austerity, stigma, threats, and, to be frank, abuse”.

He said it was vital to “demonstrate we are back again” and that disabled people needed to “mobilise” and “ruthlessly pursue” their demands.

He said: “I just get angry about it, that we are back to where we were after all these years, and there are too many people suffering as a result of that.

“So, this time we can’t allow ourselves to fail.”

Megan Thomas, policy and research officer for Disability Wales, told the meeting that disabled people and their allies “must fight these announcements with all that we have”.

She said Disability Wales research on the cost-of-living crisis had found an “extremely flawed” social security system that was “humiliating, traumatising and incredibly complicated”.

And she said the government’s proposed changes would “do nothing to support people into work and do nothing to support people out of poverty”.

Douglas Bryce, deputy chief executive of Disability Equality Scotland, said it was still unclear how the UK government reforms would impact on Scotland, as the Scottish government has introduced its own version of personal independence payment.

But he said he needed to “robustly highlight the potential danger of suicide and increased hospitalisation, particularly of those with mental health issues” if the UK government’s proposals are brought in.

Michael Lorimer, from The Omnibus Partnership, a grassroots organisation of disabled people in Northern Ireland, said: “The new proposals are brutal and will unquestionably cause more poverty, deaths and suicides if they are not stopped.

“For this, we need to unite across the UK to build a strong resistance, so that whoever comes to power at the next general election knows that if they cut disability benefits and dare to try what the Tories are proposing, they will face serious, coordinated grassroots opposition.”

He said that Deaf and disabled campaigners in Northern Ireland were organising to set up a Northern Ireland branch of DPAC.

Svetlana Kotova, director of campaigns and justice at Inclusion London, said it was vital to find a way to communicate the financial distress disabled people were facing to the general public “who the Labour party probably thinks wants them to be tough on social security”.

She said: “I want to think that they don’t know the horrific situation we are in and wouldn’t support further cuts.”

She called for support from other organisations for the Disabled People’s Manifesto, which includes a call for a rights-based social security system, abolition of sanctions and a decent income for disabled people.

Marion Fellows, the SNP’s Westminster spokesperson on disability, the only MP apart from McDonnell to attend the meeting, said she had spoken frequently in parliament about the pledge made by Social Security Scotland – set up by the Scottish SNP government – to provide “dignity, fairness and respect”.

She said: “That’s what most people expect, and that’s what should be a right for disabled people.”

Ian Pope, acting vice-president of the PCS union, and its DWP vice-president, said his union represented members who “administer this awful benefits system”, with many of them also subject to that system as claimants.

He told the meeting of the dossier of evidence that was presented to DWP late last year and showed the depth of the department’s “staffing crisis”, with his members “going under at an alarming rate”.

He said: “These testimonies demonstrated that the staffing crisis at DWP is creating an epidemic of mental ill-health among staff and has failed to protect the most vulnerable citizens in society.”

He said DWP had been trying – and failing – to recruit 20,000 more staff.

He said: “Why could it be that people don’t want to come and work in the DWP?

“Could it be that 25,000 admin staff at the Department for Work and Pensions, and I’m one included, are currently earning less than the national living wage?

“It is an absolutely shocking state of affairs.”

He said that many of the 13,500 work coaches who joined DWP during the pandemic have left.

He added: “They told the department when they left, and they told the union when they left: ‘This isn’t what I signed up for. I thought I was joining the DWP to make a difference, to help the most vulnerable people in society, not to issue sanctions, not to issue conditionality, not to harass people into offices.’”

He also pointed to Social Security Scotland’s “dignity, fairness and respect” pledge, and said: “Imagine the Westminster DWP putting that on their website.

“That has to be something we aspire to, everybody in this room, we have to aspire to, our future Labour government have to aspire to that.”

Brett Sparkes, a regional officer for Unite, which represents both workers and benefit claimants who don’t have jobs, said his union was campaigning against in-work conditionality.

He said that this and other government proposals, including changes to the WCA, “will increase the conditionality demands on disabled people to take jobs that not only do not suit them but offer no route to progression” and will keep people “in a cycle of low pay and insecure work”.

\*Under in-work conditionality, those universal credit claimants who already have a paid job must still meet DWP requirements to look for further part-time jobs, increased hours from their current employer, or higher-paid jobs, or face a possible sanction

Picture: A DPAC direct action protest

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\#NoMoreBenefitDeaths National Day of Action Monday 4th March 2024

On 19th February 2024 at the Parliament Meeting in London, DPAC and the UK Coalition have announced a united disability resistance against the Tory Government’s proposed brutal and horrific social security reforms.

We are calling for active resistance across the UK to these brutal attacks on disabled people.

We are gravely concerned that the government plans to intensify conditions and benefit sanctions imposed on claimants and tighten the Work Capability Assessment (WCA)

This would see social security cuts for hundreds of thousands of disabled people and new powers for unqualified work coaches in Job Centres who will decide what work related activity should be carried out.

We have already seen the devastation caused by previous so-called welfare reform policies. They have failed on their own terms – the OBR confirmed more than once that they were an economic disaster. We now we also have a large body of evidence laying bare the human catastrophe these policies caused; including the 2020 report ‘Health Equity in England‘ commissioned by UCL, which states that almost 150, 000 people (the vast majority from deprived areas) died as a direct result of austerity and welfare reform policies.

Kicking the poor – particularly those in receipt of benefits – is still somehow viewed by party policy wonks on both sides as a vote winner. While the richest in our society have seen their wealth grow by more than 20% just since the pandemic.

It is important to stress that we cannot wait for a general election and a potential change of government. Labour have rejoined the attacks on claimants, saying recently that disabled people will not “languish on social security sickness support but will be pushed into work.” This is the language of Atos & Workfare all over again.

It didn’t work then, it won’t work now.

That is why we are calling for a local day of action on Monday 4th March 2024, 2 days before the spring budget, which we hope local DPAC groups and our UK coalition allies across the devolved nations will organise and participate in alongside the main London action.

The london protest will meet at 12 noon At Department of Work & Pensions Caxton House 6–12 Tothill Street London SW1H 9NA

The London protest will have BSL translation of speakers

Some funding is available for travel costs; please email DPAC [email protected] if you need support with this

---

Graphic to use on social media with hashtag #NoMoreBenefitDeaths

Please use the following descriptive text with the image:

Image says \#NoMoreBenefitDeaths National Day of Action Monday 4th March 12 noon london action

Image depicts white flowers on the grass as disabled people and allies gather to remember disabled people we’ve lost as a result of social security reforms and austerity

Underneath image Department of Work and Pensions Caxton House 6-12 Tothill Street London SW1H 9NA DPAC logo to right hand side of address

We Don't Agree on Capitalism: Demarcating the Red and Black

https://wedontagree.net/we-dont-agree-on-capitalism-(essay)

@anarchism

cross-posted from: https://slrpnk.net/post/6559910

> >Last Saturday, 3.2.24, dozens of climate activists sabotaged the gravel plant at Langen near Frankfurt. With their action, they are actively opposing the ongoing climate destruction by the operator Sehring. > > > >The construction and building industry is responsible for 38% of all global greenhouse gas emissions, particularly from the climate-damaging building material concrete. This makes the gravel mined in Langen, the main component of concrete, the driving force behind a construction industry without moderation and without a social or ecological conscience. > > > >During their action, the activists gained access to the site, cut through the conveyor belts and damaged some of the machines. Lisa Müller explains: "We must counter the ecological and social destruction of the construction industry quickly and effectively where it is happening. For us, this means directly sabotaging profit-oriented production. Because it is not only driving the climate crisis with the dirty building material concrete. By demolishing instead of sarnishing and building luxury apartments, it is also causing displacement and inhumane, concreted-over cities." In Germany, for example, 200 million tons of construction waste are produced every year during demolition and excavation - that corresponds to half of Germany's waste volume. At the same time, 517 million tons of raw materials such as lime, gravel and sand are used every year in Germany. > > > >The Sehring company is also poking at an old wound in Frankfurt and the region: as the main supplier for the construction of the new Airport Terminal 3, Sehring is fueling the long-standing conflict over noise protection, air pollution and forest destruction around Frankfurt Airport. Özge Cidem comments: "Sehring has a 'tradition' of destruction and has been involved in airport expansion since 1968. Sehring is just as indifferent to local people as it is to nature: 30.2 hectares of forest have been cleared for gravel extraction so far, and almost as much is still to be destroyed. And this while, for example, 98.5% of all trees in Frankfurt's city forest are diseased." Research by BUND also shows: Destruction is a red line running through the company's policy. According to BUND, Sehring is not fulfilling the reforestation requirements and is therefore actively contributing to the loss of the forest and biodiversity. > > > >For us it is clear: we have to do it ourselves. We destroy what destroys us and we build what builds us. > > > >Frankfurt Airport also demonstrates the short-sightedness and misanthropy of the construction industry and the profit-oriented economy: Terminal 3 is to replace the old Terminal 1 in order to continue to serve as a hub for global supply chain overproduction and an important deportation airport. The climate activists emphasize that a radical rethink is needed in the construction industry, the economy and politics. Kim Grünholt says: "Our action is part of the protests against Runway West, the resistance in Lützerath and the struggles of activists around the world for a good life for all. That is why we are resisting the industrial processes and policies that have brought us the misery of ecological and social crisis in the first place. We know that a different way of living together is possible. For us it is clear: we have to do it ourselves. We destroy what destroys us and we build what builds us." > > > >--- > > > >Local environmental initiatives have been protesting for years against the gravel works that are eating their way through the protected Langener Bannwald forest piece by piece. Find out more on our protest page Forest instead of gravel: Save the Langener Bannwald! > > > > >The article was sent to us anonymously with the request for publication. > > (Translated with deepl)

Listen

Countless tributes have been paid by friends, fellow campaigners and colleagues following the death of Alan Benson, an “astounding campaigner and ambassador” who played a major role in the fight for an accessible transport system.

As well as being co-chair of Transport for All, he was a long-serving deputy chair of London TravelWatch, a founder member of the Campaign for Level Boarding, and co-chaired the Department for Transport’s inclusive transport stakeholder group.

Transport for All (TfA) said it was “heartbroken” by his death on Sunday and described him as “an astounding campaigner and ambassador for the disabled community”.

Benson (pictured) was awarded an MBE for services to public transport for disabled people last year.

He described at the time how his activism began when – as a powerchair-user – he was left stranded on a train platform in the run-up to the London 2012 Paralympics.

He had secured a degree in computing and economics, and a masters in management innovation and change, and used those skills mostly in jobs in further and higher education before moving to London in 2011.

He told TfA last year: “I moved to London and started regularly commuting around 2012, when the plans for the Paralympics were in full swing, and there was this huge push from the government to present London as an accessible capital.

“And then, while there was all this publicity about the legacy of the Paralympics, how accessible our transport was, what an example London was going to be, I was left stranded on a train platform.”

After attending a couple of parliamentary meetings on accessible transport and contributing to a Channel 4 investigation, he was introduced to TfA and became a board member.

He then played a key role in a series of TfA campaigns, including the battles to make Crossrail accessible; to ensure reliable, accessible patient transport; and to improve access to rail stations.

He told TfA in 2022: “The campaigns I remember are the ones that make the greatest amount of change, even if they’re not obvious, even if most people won’t see them.

“So, for example, there is now a new standard of lift signage across the London Underground: it makes a lot more sense, is less technical, more human, more accessible. And a lot of people won’t have noticed this change.

“But for many disabled people, this makes a huge difference to their ability to navigate stations and move through the world freely.

“I’m also really proud of the training we did with senior staff at the Underground.

“Often the most important work we do is changing attitudes, changing industry standards, because this is what results in lasting, widespread change.”

He stressed the importance of collaboration and co-production and the support of other campaigners, organisations, charities, transport operators and allies.

Last year, he was given the freedom of the borough of Richmond, where he lived, and the council’s leader, Gareth Roberts, spoke this week of his “remarkable contribution to the lives of disabled and older people, particularly in London” and his “immeasurable legacy”.

The user-led charity Ruils, which is based in south-west London, paid tribute to the “major role” he played – which included nearly seven years as a board member – and said it would miss his “drive, determination and wry humour”.

His influence and popularity were reflected this week in the many online messages of condolence from fellow disabled activists and industry professionals.

Among the messages left on an online tribute page, many spoke of his kindness, generosity and sense of humour, as well as his “massive contribution to improving transport accessibility”.

One said: “Heartbroken. Alan was the most fearless of campaigners – his legacy will live on and we can but try our best to carry on with his work the best we can – he has changed the life of so many.”

Another described him as “one of the kindest, wisest and best people you could ever meet”.

Among the messages from industry figures, Andy Lord, London’s transport commissioner, said the news of his death was “absolutely devastating and heart-breaking”.

Peter Wilkinson, managing director of passenger services at the Department for Transport, said: “Alan was a star and a truly committed and passionate champion of passengers. He will leave a giant hole behind him.”

London TravelWatch – London’s statutory transport watchdog – said it was “devastated” by his death and that he was “held in deep affection by everyone here”.

Tony Jennings, a fellow co-founder of the Campaign for Level Boarding, said Benson was “a friend and a pragmatic disability rights campaigner, who worked tirelessly in collaboration with the transport industry to help improve accessibility and remove the barriers.

“He was a supportive advocate for disabled people and generous with his time, leaving a legacy for other campaigners and activists to continue the fight for equal access.”

He said they shared a “passion for cricket and cake”, with Benson a loyal supporter of Surrey, who would frequently post on Twitter about his frequent trips to the Oval.

He said: “He will be greatly missed by family, friends and the disabled community.

“Strength to Yvonne, his soulmate and constant support at this terribly sad time.”

Another accessible transport campaigner, Doug Paulley, described Benson as “a true diplomat, committed campaigner and gentleman” and said his death was “a giant loss”.

He said: “I got to know him through the First Bus case, where he was a stalwart supporter, and have conspired with him ever since, along with his lovely partner Yvonne.

“But he also had become a firm friend, with his cheeky and impish sense of humour yet kindly advising and reeling me in where required.

“I mourn his loss for me, for disabled and other groups he supported, but particularly for his friends and his lovely partner.”

Listen

Disabled activists and allies came together in parliament this week to call for an end to the degrading treatment, dehumanisation and even torture that young disabled people are subjected to in institutional care settings.

Members of the End Torture of Disabled People campaign described how a series of media exposés and inquiries have revealed abuse of disabled children and young people in care homes, residential special schools and mental health institutions.

Ellen Clifford, a member of the national steering group of Disabled People Against Cuts (DPAC) and author of The War on Disabled People, said that behind these scandals was “a culture that violates people’s rights and allows degrading treatment”.

Among the scandals she highlighted were those at children’s homes in Doncaster run by Hesley Group, which is owned by a private equity firm; those at homes run by Calcot Services for Children; mental health units run by The Huntercombe Group; and failures by Tees, Esk and Wear Valleys NHS Foundation Trust.

She said that these examples of torture and abuse “are not anomalies” but are “part of a wider system, where physical restraint and seclusion rooms are used as common practice”.

She said disabled children and young people are placed in settings many miles from home, where they are traumatised, and then punished when they respond to that trauma.

“Thus, their distress escalates, their trauma is entrenched, and they’re told that services within the community cannot cope with them, so they become trapped within abusive institutions.”

The campaign aims to eliminate the use of these segregated settings, and end the torture, violence and abuse of young disabled people across such services.

It is led by the The Alliance for Inclusive Education, and backed by DPAC, Reclaiming Our Futures Alliance (ROFA) and other disabled people’s organisations including WinVisible, Sisters of Frida and Deaf Ethnic Women’s Association (DEWA).

Simone Aspis, who set up Inclusion London’s Free Our People Now project, which is led by people with learning difficulties and autistic people, described how one autistic young person ended up in an inpatient psychiatric unit after failing to cope with the “personal torture” of trying to fit in with her school’s inaccessible learning environment.

She said a “pipeline” led from disabled children being provided with no support in mainstream schools, to pupil referral units, to special schools, to residential schools, to mental health services and finally to psychiatric inpatient care.

She said: “At the moment, disabled young people and children, the only time they only have any rights is when they’re detained under the Mental Health Act.”

Aspis said the voices of people with learning difficulties and autistic people had been missing from the debate.

She said there was a need to end all forms of segregated institutions, and that the regulators, the Care Quality Commission and Ofsted, as well as the Crown Prosecution Service, “really must get tough” with the “torture and inhumane and degrading treatment” that was taking place in segregated institutions.

Michelle Daley, ALLFIE’s director, said it was vital to remember the “legacies of the past”, such as the eugenics movement and the institutionalisation of disabled people.

She said: “We’re still using words like special education, special needs, as if it’s a favour rather than a right.

“We’re still not talking about justice… in terms of our emancipation and liberation as disabled folks.

“We want real justice and real rights, we want to talk about the desegregation of these disabled people, and we can’t continue to have the legacy of eugenics which is keeping us held back, and basically killing too many disabled people.”

Mark Harrison, a member of ROFA’s steering group and author of a new book on working with young disabled people\*, blamed successive governments for failing to implement key parts of the UN Convention on the Rights of Persons with Disabilities (UNCRPD), including articles 19 (on independent living) and 24 (on inclusive education).

He said the last Labour government decided to listen to “the lobbying voices of the segregationists and the professionals”, with the damage caused by that decision “enhanced and multiplied many times by successive Conservative governments”.

He said this had “made segregated education a cornerstone of their educational policies with the resulting disastrous situation we find ourselves in today”, with the “reinstitutionalisation of disabled children and young people in residential institutions”.

The campaign has heard how one autistic teenager – who is being supported by DPAC – has been “tormented” and left terrified by her treatment within a series of privately-run psychiatric intensive care units.

During an eight-month period, Lucy Hughes, who is just 14, was repeatedly pinned down by six support staff who had little experience or training, before she was injected with drugs, stripped of her clothes and placed in seclusion.

Her parents also saw hospital staff dragging 12-year-old children around by their collar or their clothes, “shouting and swearing at autistic children as they cried on the floor”.

The members of ALLFIE’s campaign group say they are “increasingly outraged” by the exposure of disabled young people to “neglect, violence, torture, rape and death” in institutions.

They want to hold to account those commissioning these services, professionals and staff, and end the use of institutional and segregated settings, replacing them with a national independent living service and an inclusive education service.

But they also want to ensure that the voices of the young disabled people affected by the abuse are no longer missing from the debate.

Lucy Wing, a member of ALLFIE’s Our Voice project, which aims to amplify disabled young people’s voices, told the meeting: “Despite decades of disabled people sharing their experiences of segregation in education and organisations campaigning for change, special schools and residential institutions are still the norm for disabled children and young people.”

She said that those responsible for the abuse, assaults, negligence and torture needed to be held accountable.

She said: “We need an explanation to why the countless reports weren’t followed up on.

“We need the reason why these schools were considered good despite evidence of abuse.

“We need national recognition that this is the reality, but it does not have to be.”

John McDonnell, the Labour MP and former shadow chancellor who sponsored the event, said disabled people had become “economic units to be profited from”, both by providers of residential care but also by the pharmaceutical industry.

He said there was a need for “a new civil rights movement” that focused on desegregation and exposed the abuse and the failure of existing provision and regulation, exposing both the results of privatisation but also failures within the public sector.

He called for new legislation on civil rights for disabled people around desegregation.

He said: “If you look at all those civil rights movements in the past, they’ve largely been based upon the exposure of a segregated society.

“And I don’t think in our community at the moment there’s a full and thorough understanding of how much segregation has gone on with regard to people with disabilities.”

He added: “Don’t underestimate direct action. That’s what we’ve done in the past. Because sometimes it’s needed to shake the place up a bit about what we’re doing.”

Navin Kikabhai, ALLFIE’s chair, said it was a “travesty”, after more than 25 years in the education sector, that he found himself increasingly supporting disabled young people who had been “locked away in residential settings”.

And he said it was “embarrassing” to see other countries “far exceeding” the UK in meeting their responsibilities under the UNCRPD, including article 15, which covers freedom from torture.

Claire Glasman, from WinVisible, said mothers who were part of the Disabled Mothers’ Rights Campaign had had their children taken away and placed in abusive institutions.

She said: “Today, more children are in care than ever. Councils take children from low-income single mothers, disabled mothers, from care leavers, and women who report domestic violence.

“Children of colour and/or disabled children are disproportionately targeted.”

And Maresa Mackeith, ALLFIE’s youth parliamentary officer, said: “Children and young people continue to experience being dehumanized by so-called trusted people.

“We are calling for segregated provision such as these institutions to be phased out and for all disabled children and young people to be included in their communities as a right with the support they need.”

\*Labels are for Jars not People: Emancipatory Approaches to Working with Young Disabled People, by Mark Harrison

Picture: (From left to right) Simone Aspis, Michelle Daley and Lucy Wing

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Disabled people who are still shielding from Covid have far less trust in the government than the general public and are far more likely to believe it handled the pandemic very badly, a survey has found.

The survey also found that immunocompromised people are far more likely to be experiencing poor mental health.

But those still shielding from the virus reported much higher levels of political participation.

The survey aimed to investigate how continuing vulnerability to COVID-19 affected people’s political engagement and mental health.

Forsaken but Engaged, a report on the survey findings, found that those immunocompromised people who participated in the survey “experienced higher levels of worry due to COVID-19, poorer mental health, lower perceptions of representation, lower trust in government, and poorer satisfaction in democracy and in terms of how the government has handled the pandemic”.

Four years on from the identification of the virus, more than 1.2 million immunocompromised people are still believed to be at high risk because their conditions and medications make the Covid vaccines ineffective.

Many are either still shielding or living restricted lives, trapped in “enforced isolation”.

The survey results were compared with a survey of the wider public.

Compared to the general population, immunocompromised people reported much higher levels of concern about the long-lasting negative impact of the pandemic on society (91 per cent were worried, compared with 60 per cent of the general public).

Nearly one in four (24 per cent) of those who are immunocompromised reported poor mental health, compared to nine per cent of the general public.

When asked to rate their level of trust in the government (on a scale from 0 to 10, where zero means “do not trust at all”), the average for immunocompromised people was just 1.19, two points lower than the general public (3.18).

And seven in 10 immunocompromised people said the government had handled the pandemic very badly, compared to three in 10 of the general public.

But their experiences of prolonged shielding appear to have increased their levels of political engagement.

Compared to the general public, in the past 12 months, 71 per cent of immunocompromised people said they had contacted a politician or government official, against just 18 per cent of the general public.

And 88 per cent said they had signed a petition (against 40 per cent of the general public), while nearly three-fifths (58 per cent) said they had posted or shared something about politics online (against 17 per cent of the general public).

Among its recommendations, the report calls for action to support and protect people who are still shielding, and those who may need to shield from a virus in the future.

It also calls on the Department of Health and Social Care, and the wider government, to recognise the psychological needs of those who have been shielding.

And it says the government should ensure those who are immunocompromised have adjustments put in place to allow them to vote in-person safely.

The Forsaken but Engaged inquiry was a collaborative project between the universities of Liverpool and Bath; the all-party parliamentary group on vulnerable groups to pandemics; Forgotten Lives UK – which campaigns on behalf of the 1.2 million people who are still at high risk from Covid because of a compromised immune system – and the national expert group for immunocompromised patients.

Mark Oakley, co-leader of Forgotten Lives UK, said: “This report highlights the stark contrast between the immunocompromised, who are still shielding, and the general population.

“They are now heading into their fourth Christmas shielding and this report shows how they are being ignored.

“The scale of increasing mental health issues caused by the isolation and the problems it is building for the future is shocking and this needs to be addressed urgently to protect their mental and physical health.

“It is no wonder that the report shows the level of dissatisfaction of government handling of the pandemic is double that of the general population.

“Those in this position have shown a stronger desire to vote, take part in political activities, and are four times more likely to try to contact their MP.

“It underlines that those affected by this need to be engaged with properly on all levels by politicians and facilitated to be able to do so safely.”

Dr Luca Bernardi, a senior lecturer in politics at the University of Liverpool, and one of the report’s authors\*, said: “Our findings reveal that Covid is not a thing of the past for immunocompromised people, who feel left behind and unrepresented by the political system and whose trust in government is way lower in comparison with the general public.”

\*The other author was Dr Jo Daniels, senior lecturer and clinical psychologist at the University of Bath

\_A note from the editor:

Please consider making a voluntary financial contribution to support the work of DNS and allow it to continue producing independent, carefully-researched news stories that focus on the lives and rights of disabled people and their user-led organisations.

Please do not contribute if you cannot afford to do so, and please note that DNS is not a charity. It is run and owned by disabled journalist John Pring and has been from its launch in April 2009.

Thank you for anything you can do to support the work of DNS…\_

Donate