The settlement is the FTC’s first ban on selling sensitive location data.
The settlement is the FTC’s first ban on selling sensitive location data.
The Biden administration stopped a company from selling data on people’s medical visits on Tuesday, its first settlement on a privacy issue that has many Americans concerned about who can see their most sensitive personal data — particularly visits to abortion providers.
After an investigation, the Federal Trade Commission said it had reached a settlement with Outlogic, a location data broker formerly known as X-Mode Social, which had been collecting information on people’s visits to medical centers.
The settlement is the first major enforcement on location data since a 2022 executive order directed the government to ramp up privacy protections for anyone seeking an abortion.
The FTC has been cracking down on health privacy violations after the U.S. Supreme Court ruled there is no constitutional right to an abortion when it overturned Roe v. Wade in 2022. A Biden executive order in July 2022 directed federal agencies to protect people’s privacy related to reproductive health care services.
The Markup found that the data broker was receiving location data from the family-tracking app Life360 as well as dating apps for the LGBTQ community.
Real shame that they'll publicly shame Life360, but not the dating apps selling our their customers. I'm going to assume it's grindr since it's the biggest name that I'm aware of, and surprisingly isn't owned by match group who I was going to throw under the bus.
This is not the function of HIPAA exactly. HIPAA is primarily used as a way to regulate the sharing of health information, and provides very specific requirements for the sharing of health information, with many caveats.
HIPAA specifically targets healthcare providers (covered entities) and the third-parties (Business Associates) which they work with. More specifically, it provides requirements for the sharing and storage of data from a covered entity to a business associate, and establishes liability in the event of a data compromise for either party.
If the data did not originate from a healthcare provider, likely HIPAA does not apply.
In this instance, the applications identified as sharing the data are not covered entities or even business associates.
It doesn't contain actual medical data, but a court might be able to conclude that your whereabouts might be protected data from a health privacy perspective.
I really don’t understand why so many people think so many things fall under HIPAA. Just because it is tangentially related to medical information (in this case the fact that your location showed you were close to a medical center), does not mean it falls under HIPAA.
During covid, my company was deemed essential. (Non-healthcare) They would send a email alerting people to the fact that someone had had covid in the building, but refused to name that individual due to it "being a HIPAA violation."
It was so frustrating. I'm like, that's not how that works.