Skip Navigation
InitialsDiceBearhttps://github.com/dicebear/dicebearhttps://creativecommons.org/publicdomain/zero/1.0/„Initials” (https://github.com/dicebear/dicebear) by „DiceBear”, licensed under „CC0 1.0” (https://creativecommons.org/publicdomain/zero/1.0/)AD
AddLemmus @lemmy.ml
Posts 5
Comments 73
Growing up with ADHD starter pack
  • Yes, weird with the teacher relationships. A kid from my class, strong on the hyperactive side, was really hated by some teachers. One threatened to beat him up in front of the whole class, another (of the super nice relaxed ones) just threw him out with a book to study on his own in the hallway. I suspect that he never did a single line of homework or studying at home, but his test grades were too good to let him fail.

    I don't have hyperactivity. The best teacher I had really hated me, because he was all about punctuality, reliability, discipline - totally not my approach to math. His teaching was great, I didn't forget a single lecture to this day, and it allowed me to get all the math course certificates for a STEM field later, although I never finished the degree. A few STEM teaches though realised that my obsession with electronics and programming was really getting somewhere and tried to motivate me to put in the time in related fields, but I never put any work in, and only for computer science was that enough to still ace it.

    My own son is even stronger in the extremes. He is barely old enough for his grade, but already has to take math in the grade above. Can't skip, because his reading & writing is just on par (although in two languages). But he is extremely disruptive. His teachers seem like they understand that he puts in the same mental effort to focus and sit still, just with worse results than the average. And they support my suspicion that he has ADHD and should get tested. Well, will probably take 4 - 6 months to get an appointment, and another 4 - 6 months until there is a diagnosis.

  • Some people with ADHD thrive in periods of stress, new study shows
  • Amazing about the comments is that while a majority seems to "deliver" when the pressure is on, they split 50/50 on whether they feel great during it or suffer greatly, no middle ground.

    I'm definitely in the 2nd group. I can get it done if the alternative has horrifying consequences, but it's not a good feeling.

    Maybe two things are mixed up, though. One is like a thing where not doing it is horrible, such as vet appointment for the pet, crucial last deadline at work, kid's birthday party. The other is like working in a high stress environment, like a project where everything is on fire and under pressure, it's not about our condition, or an emergency situation like a sinking ship.

    I, personally, suffer greatly in the former, but less than the average person in the latter.

  • What improved immediately with meds - and what didn't
  • This is certainly very helpful as it is. The way I had to live below my potential, I need only like 50 good days in a year. If things don't work out as I hope, I could use Methylphenidate 50 times per year to achieve that.

    Overall, I thought there is not such a clear separation between the euphoria and fixing the ADHD symptoms, as both are caused by noradrenalin, among other things. However, after some reading today, I realise that the intended effect of the medication works with such neurotransmitters in the prefrontal cortex and can very well do so over years, while euphoria is caused by the same neurotransmitters, but elsewhere.

  • LPT: Name your bank accounts with the amounts they need to balance out at the end of each month (+ overdraft)
  • Definitely a good approach, maybe for people like ourselves even more so. But for it to work with my chaotic finances, I'd probably need a business account and pay myself a regular wage. If I'd do things in such an orderly fashion, I'd probably not be here in the first place, and we'd never have met :-)

  • What improved immediately with meds - and what didn't
  • I was afraid it might be like that. Also quite possible that the euphoria does part of the job, so I actually need more. Low dose opioids have a similar effect on me - I'm euphoric, I get things done. So currently, it might even be like 60 % euphoria, 40 % noradrenalin, explaining that I need only 12 mg when the lowest child dose even is 20 mg. I might end up with something like 30 mg.

    The danger I see is that I think I need to up the dose to match the euphoria from the start, while I actually need to get to the point where it's 0 % euphoria, 100 % noradrenalin.

    Very much simplified, if not wrong, as noradrenalin might be a main contributor to the euphoria.

  • LPT: Name your bank accounts with the amounts they need to balance out at the end of each month (+ overdraft)
  • Really doesn't work with my life. Extreme, sudden expenses, such as a 6k health insurance debt, hit me with as much surprise as a sudden project that pays 20k within 20 days. I just got to roll with it and hope it stays in the + somehow.

  • Infuriating appointment today
  • He seems completely incompetent altogether. I expressed concern that a stimulant would not be right for me, as even coffee has an extreme effect when taken after a long pause. But everybody, GP, therapist and psychiatrist, insisted that we should try MPH or AMP, as it is so much better, even though the whole prescription process is complicated for a schedule 2. And it worked out great from the very start.

    He seems to worry about the wrong things. To rather let a patient in his care suffer with 3rd choice meds for months (?), followed up unmedicated than take the chance that you might be a 1%er who abuses it. For which there isn't even much indication, as you have a prescription.

    However, if I really try to give him the benefit of a doubt: A quick search shows that there are some risks in combining weed and medical stimulants. The positive effect can be reduced, and cardiovascular risks of stimulants increase. So, without medical training, I don't know if that means that you have to search for alternative for either of those first (switch either the pain meds or the ADHD meds), and then continue treatment for both, or if it really is so risky that you absolutely must keep one of the conditions untreated. As far as I understand, weed is rarely the only option and, at best, only slightly better than the next best alternative. For ADHD, on the other hand, MPH or AMP or so much better than the next best alternative. I tried Modafinil myself, and the side effects were severe.

    So maybe his tone was just off, and he should have explained those careful considerations for the best therapy options, rather than be like "eek junkie, get out until you are clean".

    I might be completely wrong here, it's literally what spins off in my head after 2 minutes of search.

  • What improved immediately with meds - and what didn't
  • GP and therapist also said that methylphenidate is the way to go, without alternative, even. But the psychiatrist said that for adults, lisdexamfetamine is slightly better, both regarding best effect and lowest side effects. A quick web search seems to support that, as well as what people in this community, who tried both, said.

    One disadvantage is the insurance: If I try some day to have it covered, it's quite likely that they insist to pay only for the cheaper methylphenidate, and only switch if there are significant problems.

    I found this German source for dosage and finding the right medication very good: https://www.adxs.org/de/page/232/eindosierung-von-medikamenten-bei-adhs#content-241-elvanse-lisdexamfetamin

  • What improved immediately with meds - and what didn't
  • I started with 5 mg, which had a significant, great effect for 4 hours, then crash. I worked up from there and think that 12 mg is the right one for now.

    I followed this guide in German, and agree from experience that starting with 30 mg or even 20 mg is not a good idea: https://www.adxs.org/de/page/232/eindosierung-von-medikamenten-bei-adhs#content-241-elvanse-lisdexamfetamin

    Interesting is their take that the right window +/- 5 mg must be hit, otherwise too low of an effect or very unpleasant side effects.

    For Modafinil, I also went with 1/8th of a normal dose for a while, working up over months to 1/2.

  • What improved immediately with meds - and what didn't

    I have used Modafinil before occasionally, and it helped quite a bit, but the strong side effects forced me to save it for emergencies.

    6 days ago first Elvanse. Within about 30 minutes of the first dose, many problems were gone completely! No mental effort to do what's needed, be it laundry or a subtask at work. It feels like my brain is a little butler whom I can just order around without doing it myself. Many things just happen, e. g. I put garbage in the bin, carry dishes back to the kitchen as I go anyway, without thinking about it. Complete instant fix. Also a constant feeling like a hundred bucks, better than many recreational drugs.

    Almost feeling bad when gaming at the end of the day, keeping it brief, doing extra work hours right before bed. The effect has somewhat worn off by then, but the no-effort-to-do-things is still there.

    I always did feel better when checking things off my todo-list, even untreated, but now I get a lot more done, since there is no pain to just do it.

    I can also work out until the body just physically gives in; there is no mental barrier to fight like "ONE MORE REP!!!". It might have been a mistake to exploit that in the first few days, leading to exhaustion and more difficulty to judge the right dose / side effects. When I saw someone who was very buff, I used to think: He may not look like it, but he has fantastic discipline, focus and willpower. Now I wonder if some of these people are just normal, lol

    This is a completely different life, and slightly better than Modafinil! I am a little worried about when the effect wears off and I need a break, but I've been there before: A lot can get done with just about 50 "super-days" per year.

    What did not improve one bit is my forgetfulness and other cognitive problems. Just as stupid as before, e. g. packing a suitcase, putting things next to it to stash something else and then forgetting them. Leaving my phone in insane places. Barely able to use the self-checkout at a supermarket. It's always an adventure, looking confused between the card screen and the items screen, often needing an employee, forgetting my card there and not realising before the next day etc. Problems with web UIs & pop-ups. That's what my GP wanted checked out 1 1/2 years ago, but no appointments.

    17
    You have two (thousand) wolves inside of you
  • I noticed that I can be a bad friend, at times. Need to unload for hours, too impatient to listen, and when I do it out of politeness, I won't pay attention.

    With some friends, I suspect that they just have the pity to be like ChatGPT, like "That's so relatable!", "Wow, that IS an interesting day you had there!", "So funny! Glad I missed South Park to listen to your much funnier ramblings!"

    At times, I had a like-minded friend, and we would just take turns talking for roughly the same duration, like an unspoken agreement.

  • Elvanse - safe low dose?
  • First test: 5 mg (~ 15% of 30 mg) at 8:30 am.

    It kicked in really hard, like a thick line of quality speed. It didn't feel like something that a doctor would prescribe. Got a lot done, then hard crash at 12:30, lying down and dozing off for 20 minutes. The mental effect was at least as good as it was with Modafinil: I tackled the most urgent todo without mental effort and little chores just "happened". But with a high like from recreational drugs.

    Maybe what contributed was that I did a quick, but intense workout.

    So it was perfect - a very safe dose, yet also the productivity boost I needed for the day. 10 mg might also have been fine, but taking the entire 30 mg (or even 20) would have been a mistake. Certainly no risk to not feel anything.

    I wonder if I should take another 2.5 mg for the afternoon, or just use tea and coffee as usual.

    This strange effect regarding intensity and duration was no surprise - I observed that with other medication and drugs before, the doctor understood it and took it into account, thus the individualised instructions.

  • Elvanse - safe low dose?
  • I don't know why he does what he does, but he said that I should find the ideal dose, which often is between two capsule sizes. He encouraged me to take any dose lower than 30 mg for the first month, and after he sees me again to fine tune it by dissolving in water.

    I dissolved it in some water in a protein shaker with marks, so I can take exact 3 mg doses (10 % steps).

    Only thing I don't like about this is that children are in the house, and there should not be deadly poison water standing around anywhere. The capsules are in a lockbox.

  • Elvanse - safe low dose?

    As suggested myself and encouraged by the doc, I'll take a fraction of a normal dose to check it out first. He signed off on any dose that is lower than the one he prescribed (30 mg in the morning), and the capsules are intended for opening and dissolving in liquid.

    So, I'm very sensitive. Low dose opioids for a cough give me euphoria, and when I tried Modafinil, 1/4 of a pill (2 pills is normal!) turned out to be just right for me.

    On one hand, I could really use the full productivity boost tomorrow, which would mean trying 1/4 of 30 mg, 7.5 mg. On the other hand, safer would be 1/8th again as it was with Modafinil. Then again, 1/4 of the Modafinil dose was "bearable", it was not intense suffering.

    Trying 1/8th in the morning and another 1/8th at noon if the effect is really as low as a cup of coffee could also be an option, with the risk of losing sleep. I tend towards that option.

    Some of the worst hours of my life were on the minimum dose Venlafaxine (and many report that), so I'm careful.

    What do you think? Doing the super-low 1/10th test at 4 pm would still take away my sleep, right?

    13
    Body Doubling
  • Not sure if related, but I have absolutely no problem getting things in the household done when I'm voicechatting with a friend. Odd as it is, videos that don't require watching while listening (e. g. youtubers that just talk into the camera) also work, but podcasts don't (must be mental).

    When I can't get my "fix", no friends with time online and no interesting video of that type, I end up searching for it so long that I get too little sleep, rather than just do the 15 minutes work without.

  • The crazy quest to get treatment - from people who don't understand it
  • I think it should work exactly like the fire department. Entirely tax funded, no hassle. A hospital is, in my eyes, more similar to a fire department or a police station than it is to a super market, and that's how it should work.

    But it only works well all-in. A strange system of compromises forged between parties with entirely opposing views over 50 years is terrible.

  • The crazy quest to get treatment - from people who don't understand it
  • Most recent example: Started freelancing in July again, got to pay nearly 1k per month. First money received is EUR 4400 end of September.

    I tried the alternative route last time, and it's no fun: Write in certified mail that I make less and need a lower rate, they'll ignore it, say they didn't get anything, I'm not insured any more. Go to a lawyer with the proof of certified mail, win, get the lower rate and they have to pay back medical bills, EUR 500 lawyer costs though. Have to pay back 1k per month anyway if it turns out I make enough in the last few months of the year, so it was all for nothing.

  • The crazy quest to get treatment - from people who don't understand it
  • I will never understand how the land of fast food and unnecessarily pre-packed products fills pill bottles by hand in the pharmacy. Like, milk I would understand; I lived near a farm, and we would go over with huge milk cans and have them filled there by the farmer. But that same concept seems strange to me for a pharmacy. Like, even our weed and coke dealers have pre-packed little plastic bags, you don't like bring your joint papers and have them individually filled.

    Also, this seems like a really complicated process that causes lots of problems. Isn't it pretty much likely that even in your best state of mind, you'd fill about 1 out of 200 wrong, and about 10 % of those mean near certain death for the patient? So weird.

  • The crazy quest to get treatment - from people who don't understand it

    After waiting for many years, I thought I've been at least on track to get treatment for the past 6 months. All out of pocket, in addition to the nearly EUR 1000 health insurance premium per month.

    Lengthy psychologist sessions, official diagnosis by a licensed therapist in writing. Doctor appointment with the written diagnosis, but he said only a licensed psychiatrist can do the initial prescription. Find one, make appointment.

    But then he needed up to date blood count and ECG first, appointment cancelled 2 hours before it started. The blood count was at a different doctor than my usual one, because last time, mine was on vacation. So ECG and blood count from two different locations. All during hours I actually had to be at work. But what can I do - botch one last job before I get treatment and everything will be great for the future, right?

    Sent it all in upfront, and another problem: Apparently, the ECG must be evaluated for findings. Which any doctor is trained to do, but it needs to be returned to the doctor who did it, like this magic quest, because in theory, I could send an ECG that is not mine to a different doctor for the findings. (Cui bono?)

    The last 4 steps, I've been told that this is "this one really really really last thing", and it sounds like one of these advance fee scams that are like "just one more Apple gift card for the taxes, and we can transfer your lottery winnings".

    I bet all of these things would be easy for somebody who does NOT have ADHD. They just do them one by one, and somehow that happens at a magic hour where the doctor office is open but also their workplace is not.

    The lack of understanding how ADHD works, by the very people who are supposed to diagnose and treat it, reminds me of this scene from Groundhog Day: He explains the problem of being in a 24 hour time loop to a seemingly understanding therapist, who then is like: "I understand completely, come back in 3 days for a solution!" Ah, here it is: https://www.youtube.com/watch?v=XFdwLNiZq7M

    18

    Scumbag Monday

    9

    Casual studying has never worked before, let's try it again!

    The only thing that really works for me is when I make it a 25 minute hyper-focussed challenge: Set a timer and make the maximum progress that is theoretically possible in that time. No getting water, no toilet breaks, no looking at the phone. Beats 3 hours of getting a glass of water, toilet breaks, getting hungry, realising I should work out and shower first and finding more reasons to jump up any day - surprisingly. Got to always treat it as if it were a competition.

    11