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maryXann @lemmy.autism.place
Posts 1
Comments 17
Do you struggle to talk about certain subjects?
  • I have something that may or may not be related: some stuff just makes me physically faint. It's never sudden, I see it coming and if I manage to get away from the trigger, lay down and wait it goes away, but if I can't do it quick enough I know it can be dangerous. Among the triggers are intense pain (like burning your stomach by swallowing something too hot) but also conversations about "real" body horror (a movie is fine, but somebody telling me about how their plan to get an operation often isn't, back in middle school I remember fainting as the teacher was talking about some health risk).

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  • My local roleplaying game club. I'd bet half of them, despite not acknowledging it, are considerably deep on the spectrum. Funny bit: My aesthetic ideals clash with those of one of the guys there: he likes things to be well-ordered in neat piles and I like non-patterns. Doesn't stop us from being good friends.

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  • On the waiting line for a diagnosis (I should call them btw), unemployed despite having diplomas. Those last days I am facing a weird puzzle: I have to get analyzed at the lab, which is open from 7:30 to 11 am, and need to be exactly 12h fasting at that moment, but my daily routine involves a big meal at midnight and skipping it would make me well over the 12h fasting duration (and being hungry isn't very fun as you may know). I think I will manage it somehow but currently that's a bummer.

    Better: a gal I like a lot is visiting this weekend and it's going to be great. She is one of the only people with whom I am able not to mask.

    Also that's a great season for mushrooms. Got a full basket of chicken of the woods last week and still have some left.

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  • I do care. I totally get how you can be charismatic in school despite being autistic, that is perhaps the biggest misconception. I personally think if I had no morals and just wanted to make money my best bet would be running some kind of cult (but that would be wrong ofc).

  • Address to our community.
  • I am a native French speaker who had a phase with an interest toward grammar, so I probably can help you with it if you are learning this language. Also I am quite good at explaining maths to kids or teens, even those with difficulties. It gets harder with adults.

  • POV: Autistic person at a party
  • You're welcome!

    One of those traumatic experiences was directly linked to the environment and is perhaps more similar to the one in the video. It was at the school's restaurant: picture a room with 60 children aged 2 to 11 and handled by a pair of ladies who shout a lot and are overall not very good with children (aka: one of the worst place ever).

    One day we were asking wether we wanted the entry dish or not. I decided to try it, as I was taught to always try new foods before saying I don't like them and I was the only one who said so. That dish was honestly atrocious (I can handle most foods, even by non-autistic standards, but this was vile in all the ways school food can be) and I was supposed to finish my plate before the next dish could be served. All the other 59 kids, plus the two ladies, were waiting for me to finish that stuff. I don't remember what happened next and perhaps it's for the best.

  • POV: Autistic person at a party
  • I don't really connect with this. My experience with that kind of situations would be me focusing on one specific aspect of the party and ignore everything else. Like I would spend all the time trying to fold the napkins into interesting shapes, or feeding grass to some slug I just caught and wonder why it doesn't seem to like it.

    I wasn't diagnosed and yet when I look back at it I had the chance to be surrounded by decent adults who were happy about me being me. There have been bad situations of course (that I am still a bit traumatized by) but I can count them on my fingers. Most are related to my dad having his own issues (I hope he will find the help he needs but the more time passes the less hope I have).

  • Everyone's a little bit autistic
  • The diag criteria are an ad hoc thing that only exists so that the society has a systematic way of deciding wether a given individual is autistic or not. Someone who just barely misses the criteria to be positevely diagnosed could very well have a lot in common with those who meet slightly more criteria.

    Think of it like the administrative criteria to be considered "poor" in a given country: it helps to decide who can benefit from financial help and such, or to have statistics on how fair is the ressource distribution through the time, but it doesn't mean that your life will switch the very moment your income crosses the limit.

  • Movie Autism
  • Hypersensitivity is its own thing but the comorbidity rate with autism is huge. I's also not always high pitches: personally I have issues with the air pressure, daylight, and many smells.

  • What do you think would happen if your life were captured and aired like on The Truman Show?
  • People would think the scenario is a bit contrived and they wouldn't believe is wasn't scenarized.

    I have a tendency to do the things that will save a desperate situation but also (mostly) create stupid obstacles out of nowhere. Basically 'this guy' from an xkcd strip

  • Just wanted to share today's little success
  • Oh, one call is already stressfull* for me, but I can manage it. Perhaps it would already qualify as "not comfortable". That said there is a gradation between your average "not your cup of tea but that's ok if you can take your time for it" and "risks having a meltdown in the middle of a phone call". It was dangerously close to that second category.

    *Except those from that one person I'd marry if we weren't both 'commies' who think marriage is a thing of the past.

  • Just wanted to share today's little success

    I know it would sound stupid for most people, but not here (I hope?)

    So I am in my early thirties and I have a long history of not going enough to the doctor. When I was a child my mother was my referent doctor and she always have been in the "no need to take medecine if it's going to heal by itself" school of thinking (I don't mean that in a bad way: I still got my vaccines, etc, just that she would directly send me to specialists when there was a serious issue). After I left the house I never cared about changing my referent doctor (although of course my mom who lived hundreds of kilometers away couldn't fill this role anymore) so I just stopped seeing any health professional.

    As it appeared to me more and more obviously that I was autistic, I wanted to get a diagnostic (it is needed here in France if I want to have accomodations at work and such, also I would get some money that wouldn't hurt). Among all of the steps I needed to consult a doctor. I asked some people I know if they knew doctors who would take new patients, looked all over the internet, made way more calls than it was comfortable... but I couldn't find any. The only appointment I could get had a 6 months delay, plus it was with a substitute, and I was so stressed about it that I messed up the date and came the previous day... In the end I managed to get some papers I needed but nothing more.

    About a month ago I was feeling a bit sick and I decided it was enough and I needed something to be done. All the doctors were full, as always, or didn't take new patients, but some were noted as on vacation but with a substitute (and said substitute didn't specify if they took new patients or not). Rather than calling to check, I decided to just get the appointment. At worst they would send me a mail to tell me my appointment had been cancelled or whatever. Still it was very stressfull.

    Anyway, my appointment went very well and this substitute doctor was very nice. She told me she would open her cabinet next year and would be able to be my refferent at that point, but also that before that she could work as a "temporary refferent" for most stuff. She looks like a great doctor.

    That's all! I hope it wasn't too boring to read through my ramblings.

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  • The one thing I like the least is A2. Seriously, once I had to sleep at a friend's house because I couldn't find my key, which was in my pocket all along. If said friend hadn't been there I probably would have slept outside.